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A Winter School run by the UCL Centre for Immunodeficiency

28th February – 2nd March 2011

Advances in Primary Immunodeficiency

Set in the beautiful surroundings of Cumberland Lodge in the Great Park of Windsor, this three day residential course will cover adaptive and innate primary immunodeficiency diseases (PID). Aimed primarily at clinicians, the program will focus on scientific advances in the basic mechanisms and management of PID. In addition to lectures, there will be time set aside for case presentation and the opportunity for informal discussions. The school is an ESID-endorsed event.

Deadline of applications: December 10, 2010

For more information contact Dr Siobhan Burns at s.burns@ich.ucl.ac.uk
or Julie Lewis, School Secretariat at julie.lewis@ich.ucl.ac.uk

Useful links: http://www.centreforimmunodeficiency.com/

Please download the programme and registration form from the "Documents" section of this website!!

New Survey - Splenectomy in CVID - Participate NOW!

Data collection forms now available for download in the section "Documents" on this website

Dear Colleague!

There is currently no evidence to guide decisions when splenectomy is being considered in patients with common variable immunodeficiency.

We are therefore conducting a survey to assess the reasons for and outcomes of splenectomy in these patients.

We would like to collect data on any CVID patients, alive or deceased, who have had a splenectomy after 1980. If you are interested in this survey and would like to submit a patient to this trial please complete as much of the form Patient_Survey_Form_Final12.pdf (available for download in the section "Documents") as you can, but even simple clinical outcome data is useful.

The results will be prepared for publication and you may nominate a co-author from your unit if you wish to contribute to the paper. All contributors of data will be acknowledged.

Please complete the following form Splenectomy_Survey_Final12.pdf (available for download in the section "Documents") for your centre and return it with the patient survey forms to the address stated in the form.

We would like to collect the data latest by 31.7.2010.

Thank you for your help,

Aarn Huissoon and Klaus Warnatz

Next Consortium Meeting planned for 30 April 2010

You are invited to the next EURO-PADnet Consortium meeting, which will take place in Brescia, Italy, on Friday, April 30th 2010. Like last time we would like to invite all PIs plus one additional person from each centre. Further information will be sent in due time.

Periodic Report, 1st reporting period

The Periodic Report has been submitted to the European Commission after the end of the first reporting period, which covers the time from 1 May 2008 until 31 October 2009. The complete scientific report is available for download for members of the consortium in the "Documents" section of this website. Results achieved during this period can also be found in the "Results" sections of each Work Package.

Next Consortium Meeting in Oxford

November 4th and 5th 2010

The next consortium meeting will take place in Oxford on Friday November 5th 2010. It will be preceded by an educational event for Junior researchers on Thursday 4th. Please check the members' section for the agenda and additional information.